Sir Gavin Williamson is calling for the Government and health authorities to accelerate new treatments to treat Huntington’s Disease.
Huntington’s Disease is a genetic brain disorder caused by a faulty gene in DNA. It is a progressive, life-limiting illness that affects cognitively, movement, and behaviour. Symptoms vary from person to person but include: forgetting tasks, involuntary movements, and changes in mood as well as personality.
It is estimated that over 8,000 people are living with Huntington’s Disease and a further 32,000 are at risk of developing it. Therefore, advancing treatment is vital to ensuring those living with the disease can live as comfortable a life as possible. Sir Gavin is also calling for any future treatments to be accelerated through the approval processes that govern clinical guidelines.
Cath Stanley BEM, Chief Executive of the Huntington’s Disease Association said: “Huntington’s disease touches entire families, and every bit of understanding and support matters. We are determined to make sure that when a treatment becomes available, everyone who can benefit from it will have a chance to access it.
“I look forward to working with Sir Gavin in the months and years ahead to secure a better future for those living with Huntington’s Disease.”
Sir Gavin said: "I welcomed the opportunity to attend this extremely important event that focussed on ways we can continue to support those living with Huntington’s Disease as well as their friends and family.
“When new, effective, treatments become available, it is crucial that these are proscribed to those with the condition as soon as possible. Whilst safety is paramount, clinically proven medication should not encounter delays.
“I’m also keenly aware that those with Huntington’s disease need support now. I will be committed to campaigning for access to treatment and as much support as possible.”
